Monday, December 3, 2007

Food Allergy Parent Group

I met briefly tonight with a group of parents who have children with food allergies. Their meeting overlapped with an important meeting of the Special Education Advisory Committee, so I couldn't stay as long as I wanted. Nevertheless, nearly 20 parents came to the meeting and I did get to talk individually with a handful of them.

The meeting was led by Maria Hardy, who has a blog called Allergy Free in Loudoun. These parents are dealing with an especially challenging life situation that I think most of us don't really understand. For these children, the real world is a dangerous place and allergies are not a health issue, they're a safety issue. It's far more complex than kids just staying away from foods that they're not supposed to eat. They need tremendous understanding from teachers, principals and fellow parents. Many times they get that understanding but sometimes they do not.

I hope that Maria or another parent will leave a comment here with a link to a webpage that can help people who are not familiar with childhood food allergies to understand the scope and importance of the challenge.

I am interested in exploring over the next year ways in which LCPS can help our teachers, principals and administrators with guidance and support in ensuring that every school is a safe place for every child with food allergies. If you are the parent of a child with food allergies, I encourage you to get in touch with this parent group for support, and with your school board member to let them know that this is an important issue for you. If you are facing challenges with your child's school or would like to highlight the ways in which your child's school is helping your child have a full and safe experience every day, I hope that you will let me or your school board representative know.

5 comments:

  1. We weren't at the meeting. Hope that someone mentioned a company, Divvies that makes nut-free and dairy-free cupcakes and nut-free, dairy-free and wheat-free gourmet popcorn --- all helpful at school parties and celebrations. They ship all of their products.

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  2. Thank you John for coming to our meeting last night and this is a wonderful post. Our meetings are open to everyone and your attendence was much, much appreciated. You have really hit the nail on the head by pointing out that it's about providing a safe environment for our kids. I'm so inspired by everyone in this group. A another issue on this subject was also brought up today by Tammi Marcoullier of the Loudoun Extra.com column, Living in LoCo. http://loudounextra.washingtonpost.com/blogs/living-loco/2007/dec/04/what-should-schools-do-about-allergies/

    There are many food allergy websites, but the best place to start is with www.foodallergy.org
    Other leading sites are www.foodallergyproject.com and www.foodallergyinitiative.com

    Our next meeting will be held at the end of January and those interested can check my blog for updated info! Thanks and happy holidays!

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  3. One additional comment: There is another group that has formed in Loudoun that specifically addresses gluten and casein allergies. They are called GFCF and they are open to all food allergy parents too. Their next meeting is this Monday at 7pm at the Loudoun Physical Therapy office in Lansdowne. Suite 500 Lansdowne, 44035 Riverside Parkway. Contact Kelly Vogt at 703-858-6667.

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  4. new support group: Loudoun Allergy Network found at: http://www.loudounallergynetwork.org/

    All are welcome to join!

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  5. I created my own blog trying to help myself, my little daughter and others understand life-threatening allergies. I am a member of LAN and know Maria Hardy (wonderful woman). You can find helpful information and links at my blog:

    http://www.VickysIckies.blogspot.com

    Wish I was there for the meeting regarding LCPS and food allergies because I am having some trouble in my daughter's school but I was just introduced to LAN recently. Thanks for the opportunity to speak up for our little ones who cannot.

    Thanita Glancey

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